Mary Rose Blackduck, a former Tłı̨chǫ broadcaster, faced a health crisis when she began experiencing frequent stumbling and muscle weakness. Despite multiple visits to doctors in Yellowknife, where she reported symptoms like painful muscle spasms and weakness, she was initially misdiagnosed and prescribed sleeping pills. Frustrated by the lack of answers, Blackduck spent nearly $6,000 to seek medical attention at the University of Alberta Hospital, where she received the devastating diagnosis of amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease.
ALS is a rare and incurable nervous system disorder that progressively damages muscles, leading to severe disabilities and a shortened life expectancy. Blackduck expressed shock and described ALS as a “dreadful, cruel disease.” The Northwest Territories Health and Social Services Authority acknowledged the challenges in diagnosing ALS due to its complexity and the absence of definitive tests, emphasizing the variability of early symptoms.
With the N.W.T. lacking a full-time neurologist, individuals like Blackduck face difficulties in obtaining timely diagnoses and specialized care within the territory. Blackduck, now coming to terms with her diagnosis, is contemplating a move to Edmonton for better access to ALS support services. Despite the emotional turmoil, she remains grateful for the clarity on her condition and is focusing on organizing her affairs while preparing for the challenges ahead.